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Policy
Submission on universal newborn screening lodged with Te Whatu Ora
Our 14-page submission, co-written with whānau, calls for inclusion of haemoglobinopathy screening at birth.
Updates from the team, research highlights, community wins, and the voices we work with.
Our 14-page submission, co-written with whānau, calls for inclusion of haemoglobinopathy screening at birth.
Our first South Island family day was a celebration of resilience, and a reminder of why peer connection matters.
A community-led study with University of Auckland. Three findings every GP should know.
One whānau's journey from unexpected diagnosis to active advocacy, in their own words.
A milestone moment that connects whānau in Aotearoa to research, advocacy, and resources worldwide.
312 donors registered in one weekend, including 184 first-timers from the Pacific community.
Stories, events, and what's happening in the world of haemoglobinopathy care in Aotearoa. No spam.