One place for everything families need, from the moment of diagnosis through life. Bookmark this page.
The first 72 hours, the first month, the first year. A practical guide for when everything feels overwhelming.
What it means, why it matters, what to do next.
Comprehensive guides to thalassaemia and sickle cell, the medicine, the daily reality, the support.
Peer mentors, online community, monthly meet-ups. You don't have to do this alone.
The often-overlooked family members. Resources for brothers and sisters of all ages.
For teens and young adults living with the condition or supporting someone who does.
Whether you're dating, partnered, or married, navigating this together.
Carrier testing, family planning, navigating your child's diagnosis.
Searchable directory with phone numbers and directions to every hospital in NZ.
Helpline, advocacy, counselling, family services, every form of practical help we offer.
Plain-language fact sheets in multiple languages, print, save, share.
Read about whānau like yours, and how they navigated their journey.
Just call us. We'll listen, then point you to the right resource. There's no wrong way to ask for help.