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Te Whatu Ora ยท April 2026
National Haemoglobinopathy Care Pathway, consultation response
Submission to the proposed national care pathway, advocating for cultural-safety, multilingual, and rural-equity components.
A public archive of every submission Muskaan Care Trust has made to government, Te Whatu Ora, Pharmac, and other regulators. Transparency is part of the work.
Submission to the proposed national care pathway, advocating for cultural-safety, multilingual, and rural-equity components.
Supporting application to expand subsidy criteria for adults with sickle cell anaemia.
Formal request for the Ministry to evaluate adding haemoglobinopathy detection to the NZ heel-prick programme.
Co-published think piece on systemic gaps for thalassaemia and sickle cell in Aotearoa.
In-person submission to the Health Select Committee on NZ's rare disease policy framework.
Submission on the proposed ethnic equity health strategy, emphasising rare disease populations.
Submission on health and wellbeing components of the Auckland multicultural long-term plan.
All submissions are public. Email us and we'll send the full PDF.