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The Muskaan Podcast

Conversations with whānau, clinicians, and advocates, about living well with rare conditions, navigating the health system, and building inclusive communities across Aotearoa.

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Latest episode

The most recent conversation

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Episode 12 · 38 min

"My son's diagnosis was day one.", A parent's first year with beta thalassaemia major

Priya R. shares the year between her son's diagnosis and finding TASCA NZ, what helped, what didn't, and what she wishes every clinician knew.

Hosted by Vivek Vij · Released June 2026

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Past conversations

Listen to all 12 episodes from Season 1, available now.

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Episode 11 · 42 min

What clinicians wish whānau knew about transfusion care

Dr Previn Dalal and a haematology nurse explain what to expect at every appointment.

May 28, 2026
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Episode 10 · 35 min

Sickle cell warriors in their own words

Three lived-experience advocates on managing crises, work, and mental health.

May 14, 2026
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Episode 9 · 29 min

Genetic counselling: what it is, what it isn't

Demystifying the conversation around carrier status, family planning, and rights.

April 30, 2026
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Episode 8 · 46 min

Beyond the Blood: the case for national newborn screening

Why universal screening matters, and where Aotearoa stands compared to the world.

April 16, 2026
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Episode 7 · 33 min

Culturally safe care: what it really means

A conversation with three migrant health advocates on what "culturally safe" looks like in practice.

April 2, 2026
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Episode 6 · 41 min

The hidden cost of chronic illness

Beyond the medical bills, appointments, time off work, emotional labour. A family's honest story.

March 19, 2026
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Episode 5 · 28 min

Peer support: why it works (and when it doesn't)

The science and lived reality of peer mentoring for chronic conditions.

March 5, 2026
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Episode 4 · 37 min

Becoming a blood donor: why it matters

NZ Blood Service guests explain who can donate, what's needed, and what your blood does next.

February 19, 2026
About the show

Stories worth telling. Conversations worth having.

The Muskaan Podcast brings together the people at the heart of community health in Aotearoa, patients, parents, clinicians, researchers, and advocates. Every episode is an honest conversation about what's working, what isn't, and what could be.

Hosted by Vivek Vij, co-founder of TASCA NZ, with guest hosts from across our community. New episodes every two weeks.

Recurring themes

What we talk about

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Living with rare conditions

Thalassaemia, sickle cell disease, and the day-to-day reality.

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Navigating the health system

Appointments, advocacy, and the unwritten rules of NZ healthcare.

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Migration & identity

How culture and lived experience shape health journeys.

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Mental health & resilience

The emotional terrain of chronic illness, for patients and whānau.

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Equity & policy

What systemic change actually requires.

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Community & care

The networks that make survival into thriving.

Have a story we should hear?

We love hearing from people who'd like to share their experience on the podcast. Patient, parent, sibling, clinician, or researcher, get in touch.